Amaya's MRI got moved up to last Friday night, 5 days early!! Because I thought that she could tolerate not being sedated, they figured that they would try it. So, we went Fri night at 8:45. She got there, chatted with the nice lady, and lied on the table. They put a medium size pair of goggles over her eyes, then put earphones on her ears and she was able to watch and hear the movie BOLT during the entire procedure. She did soooo great. About 3/4 through the procedure, they had to stop to put a small IV line in to give her some contrast. Contrast helps get a better picture for different things. For example, it helps an infection show up easier, so, contrast it was. She cried more before the poke than she did when the actually poked her. She said that she didn't even feel it!! Brave girl. We are so proud of her. So now we are just waiting to see what the results of this test are.....tick tock once again. I plan on calling Dr Dixon's office this week, like Tuesday to see if they can call and get the results faxed to them instead of waiting for it to come in the mail. I know I am inpatient, but anyone in the medical field knows the true waiting times, and this won't be unrealistic. Hopefully we will have results in a few days, and they are good results. I will take anything other than cancer as a good result, even if she ends up needing some sort of surgery.
To be continued.....
Monday, March 30, 2009
Thursday, March 26, 2009
Amaya Basketball
I am late to blog this, but it was Amaya at basketball this year. She loved to play, and actually did well, scoring a few points each game that she played. Her Daddy was an assistant coach, which I think Amaya secretly LOVED. (as did SCOTT) Unfortunately, her season was cut short with leg pain....that got worse with the running. She tried so hard to keep playing that Scott said she would hop down the court, and would stand at the other end on only one leg. Poor girl! We are hoping this instills a love for sports. (bball preferably per Scott)
Amaya making a basket! Just look at that form!!!!
This is Amaya and Shayna. Shayna is Amaya's best friend and they are in the same second grade class together. She came with us to watch a game.
Rats!!!
So, I am feeling much better. Still have the fear of the unknown, but feeling better! Once again, Amaya is doing very well, blah, blah, blah....
The new things around our house are Lilly and Nibbles. They are rats. They are actually a pretty cool pet, oh, did I forget to mention that they are our new house pets. We bought them at the petstore, we didn't catch them under the fridge or anything. So, the kids got to get these because Scott is allergic to almost everything under the sun (even the rats), but we thought that these would be much easier to contain than a dog or cat.....and way cooler than a lizard (which is what Amaya wanted at first), or a fish. They are very smart animals, and make me laugh. They are learning to trust us and come hop on your hands if you open the cage door and just wait for them. They play with little wooden blocks, drag things around their cage and crawl up the walls. Their little feet look like little hands, it cracks me up. And, you can even train these little creatures! All the kids like them and they are a great sense of entertainment for us right now. Pics to come later. (of course)
The new things around our house are Lilly and Nibbles. They are rats. They are actually a pretty cool pet, oh, did I forget to mention that they are our new house pets. We bought them at the petstore, we didn't catch them under the fridge or anything. So, the kids got to get these because Scott is allergic to almost everything under the sun (even the rats), but we thought that these would be much easier to contain than a dog or cat.....and way cooler than a lizard (which is what Amaya wanted at first), or a fish. They are very smart animals, and make me laugh. They are learning to trust us and come hop on your hands if you open the cage door and just wait for them. They play with little wooden blocks, drag things around their cage and crawl up the walls. Their little feet look like little hands, it cracks me up. And, you can even train these little creatures! All the kids like them and they are a great sense of entertainment for us right now. Pics to come later. (of course)
Sunday, March 22, 2009
Funk
I am in a funk............I am feeling a bit sad, overwhelmed, and even depressed. I am able to live and not think of this, but it seems to always be in the back of my mind. Amaya had her appt. with the orthopedic specialist last week. She still has an "irritated hip", so we need to get an MRI to see what is going on with it. When we were ready to leave the office and I was feeling pretty good, excited even, to get this MRI done, but when I saw what he wrote for the diagnosis, my mouth dropped, and a horrible feeling came over me. Rule out neoplasm, that is what it said. I can't get this out of my head. The only type of neoplasm that I have ever heard is about a cancer.....So, I just looked up more on google about this, and started to cry. I had to close out the google search.
The appointment isn't til April 1st, that is like 10 days away still. I want to know NOW. I feel like Veruca Salts on Charlie and the Chocolate factory, I want it now!!.....then she went down the "bad egg" thing. Anyways, it kills me to wait like this, and to not have connections. This sucks!!!
All in all, Amaya has been doing very well. Her legs are the same length again, she doesn't walk like she is crippled anymore, and can even run. She is still having pain here and there, but it is tolerable. It just reminds me of the unknown problem. She is still going to PT 2 times a week, and seems to progress, but the problem still exists. Marty (the PT) told me last week that he feels that it is "something structural" in there that is causing this decreased ROM, we will just have to see.
To be continued.....
The appointment isn't til April 1st, that is like 10 days away still. I want to know NOW. I feel like Veruca Salts on Charlie and the Chocolate factory, I want it now!!.....then she went down the "bad egg" thing. Anyways, it kills me to wait like this, and to not have connections. This sucks!!!
All in all, Amaya has been doing very well. Her legs are the same length again, she doesn't walk like she is crippled anymore, and can even run. She is still having pain here and there, but it is tolerable. It just reminds me of the unknown problem. She is still going to PT 2 times a week, and seems to progress, but the problem still exists. Marty (the PT) told me last week that he feels that it is "something structural" in there that is causing this decreased ROM, we will just have to see.
To be continued.....
Wednesday, March 4, 2009
Bully??
A couple of weeks ago, Jake got off the bus and had a small conversation with me.
It went something like this.
J: Mom, there were 2 boys on the bus teasing me.
M: What were they teasing you about?
J: I don't remember. (the kid really has a memory like an elephant, so he just didn't want to tell me)
M: Well, what were they saying?
J: I don't remember.
M: Well, what did you say to them when they were teasing you?
J: I told them...I'm going to beat the crap out of you!!! Then they left me alone.
Now, I don't condone this behavior, nor do I condone this type of talking. However, I have to say that I started cracking up! I couldn't believe he said this to 2 kids as they were bullying him. Good for him to stick up for himself, but not so good to talk that way.
I had words with what he said, but am happy that he didn't put up with kids teasing or picking on him.
It went something like this.
J: Mom, there were 2 boys on the bus teasing me.
M: What were they teasing you about?
J: I don't remember. (the kid really has a memory like an elephant, so he just didn't want to tell me)
M: Well, what were they saying?
J: I don't remember.
M: Well, what did you say to them when they were teasing you?
J: I told them...I'm going to beat the crap out of you!!! Then they left me alone.
Now, I don't condone this behavior, nor do I condone this type of talking. However, I have to say that I started cracking up! I couldn't believe he said this to 2 kids as they were bullying him. Good for him to stick up for himself, but not so good to talk that way.
I had words with what he said, but am happy that he didn't put up with kids teasing or picking on him.
Monday, March 2, 2009
Dr. Forness
We went to Dr. Forness, a pediatric orthopedic, today in GR. He came in wearing a Bert and Ernie tie, then proceeded to ask Amaya who the characters on his tie were. She replied with "those are the guys with Elmo". We laughed. He was really nice, and made Amaya feel really comfortable.
He seems very concerned with her left hip. She has a really decreased mobility on that side, which will aggregate the other problems of her "knocked knee" and turn that foot in even more. He called the pigeon toe's, "inward toes". He said that is not a problem and that it is a sign that her hips are a little looser and that people with this "problem" are usually fast runners because their joints move a little more. So, I am happy to report that it is not a problem at all. As far as the "knocked knees", he says that we will talk about that later. He did measure the length between the two ankles, and it is 7 cm. Usually people extend their legs down straight, and the feet or ankles tend to touch. Hers don't. The big thing.....we need to worry about this hip right now. There is something going on and we need it to "calm down".
She went for xrays, right in the office, then reviewed them with us. All the lengths are normal, no one bone is longer than the other... causing the longer looking L leg, and the joints look normal. So, what is it?
He has a couple things in mind at this point. The first thing is RA (rheumatoid arthritis), as soon as he stated that, the next thing he asked was..."does it run in the family at all?" (You might say...Grandma Pat, Granny Linda....and then there is me!) She had some blood drawn to run some lab tests to figure this out. The problem with this is, on kids, the RA tests usually come back negative, even when they really are positive.( A false negative) He says looking at her right now, it looks like that, and that she may need an MRI and a follow up with a pediatric rheumatologist. He is putting her on naproxen, which is an anti inflammatory to see if we can help it for the time being. The other thing that it may be is something that starts with a "B", I don't remember the name, but it sounds bad. It is when the top of the femur bone, at the growth plate, dies. (I made a gasping sound when we were in the office and he told us this) He said that if this is the case, that the head would grow back, but tends to not grow back correctly, and is sometimes mis shapen. Anything to do with a bone growth plate on a child is bad. It means chronic problems for the rest of a life, and even surgery. He said that this is not showing up on the xray right now, and being that it has been going on for like 3 weeks already, that he thinks he would be able to see it there. So, back to the big question....What is it??
She is to do NO running, jumping, or any sports (NO BASKETBALL SCOTT!) right now, and we follow back up in 2 weeks. He wants to see if the naproxen helps the situation.....leaning towards RA, if that is the case. He said that we can continue with physical therapy, since it is not hurting her, and hey...who doesn't want a massage 2 times a week. Definitely DO NOT go to a chiropractor for this, it is not something that can just be adjusted, and kids shouldn't go to the chiropractor anyways. ( he is even a DO, and does some manipulation in his practice )
He did say there were some other things for causes, but wants to work on these two things right now and that the others were "zebras". So, we will wait and see.....
To be continued....
He seems very concerned with her left hip. She has a really decreased mobility on that side, which will aggregate the other problems of her "knocked knee" and turn that foot in even more. He called the pigeon toe's, "inward toes". He said that is not a problem and that it is a sign that her hips are a little looser and that people with this "problem" are usually fast runners because their joints move a little more. So, I am happy to report that it is not a problem at all. As far as the "knocked knees", he says that we will talk about that later. He did measure the length between the two ankles, and it is 7 cm. Usually people extend their legs down straight, and the feet or ankles tend to touch. Hers don't. The big thing.....we need to worry about this hip right now. There is something going on and we need it to "calm down".
She went for xrays, right in the office, then reviewed them with us. All the lengths are normal, no one bone is longer than the other... causing the longer looking L leg, and the joints look normal. So, what is it?
He has a couple things in mind at this point. The first thing is RA (rheumatoid arthritis), as soon as he stated that, the next thing he asked was..."does it run in the family at all?" (You might say...Grandma Pat, Granny Linda....and then there is me!) She had some blood drawn to run some lab tests to figure this out. The problem with this is, on kids, the RA tests usually come back negative, even when they really are positive.( A false negative) He says looking at her right now, it looks like that, and that she may need an MRI and a follow up with a pediatric rheumatologist. He is putting her on naproxen, which is an anti inflammatory to see if we can help it for the time being. The other thing that it may be is something that starts with a "B", I don't remember the name, but it sounds bad. It is when the top of the femur bone, at the growth plate, dies. (I made a gasping sound when we were in the office and he told us this) He said that if this is the case, that the head would grow back, but tends to not grow back correctly, and is sometimes mis shapen. Anything to do with a bone growth plate on a child is bad. It means chronic problems for the rest of a life, and even surgery. He said that this is not showing up on the xray right now, and being that it has been going on for like 3 weeks already, that he thinks he would be able to see it there. So, back to the big question....What is it??
She is to do NO running, jumping, or any sports (NO BASKETBALL SCOTT!) right now, and we follow back up in 2 weeks. He wants to see if the naproxen helps the situation.....leaning towards RA, if that is the case. He said that we can continue with physical therapy, since it is not hurting her, and hey...who doesn't want a massage 2 times a week. Definitely DO NOT go to a chiropractor for this, it is not something that can just be adjusted, and kids shouldn't go to the chiropractor anyways. ( he is even a DO, and does some manipulation in his practice )
He did say there were some other things for causes, but wants to work on these two things right now and that the others were "zebras". So, we will wait and see.....
To be continued....
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